Imagine if every doctor in Europe used the same checklist to track how young cancer patients are doing, not just if they survive, but if they can keep their jobs or start a family. Right now, this care is a patchwork and varies by country. This effort builds a shared digital system to standardize these checks and use the data to improve treatment across borders.
Healthcare for young adults with cancer is inconsistent across Europe, leading to poor tracking of life-altering issues like infertility and unemployment. This lack of standardized data prevents the optimization of care and resource allocation.
A Core Outcome Set (COS) for young adult cancer patients and a pan-European digital ecosystem for data management and clinical decision-making.
If you are an EHR provider dealing with fragmented patient data for young adults — this project developed a Core Outcome Set that allows for standardized data management and clinical decision-making across 5 national healthcare systems.
If you are a drug developer dealing with a lack of real-world evidence for patients aged 15-39 — this project developed a pan-European ecosystem that pools patient-centered data to improve the reporting and assessment of treatment outputs.
If you are an insurer dealing with high costs of long-term complications like unemployment in young survivors — this project developed value-based healthcare tools to track and improve outcomes for this specific age group.
Based on available project data, the EU contribution is EUR 7,235,023, but there is no specific pricing for commercial licensing mentioned.
Yes, the project is implementing the system in 5 national healthcare systems and building a pan-European ecosystem designed to welcome future countries.
Based on available project data, specific IP or licensing agreements are not listed; however, it involves a consortium of 15 partners including research and industry entities.
The project runs from 2022-10-01 to 2027-09-30, with the overarching ecosystem deployment scheduled for month 24.
It integrates by establishing national infrastructures for outcome data management and clinical decision-making within the targeted national healthcare systems.
The consortium is heavily weighted toward research and clinical expertise, featuring 7 research organizations and 4 universities. With only 1 industry partner and 1 SME (7% industry ratio), the project is primarily driven by clinical validation and policy improvement rather than immediate commercial product development, though the inclusion of the European Cancer Organisation suggests strong institutional backing.
Contact the Netherlands Cancer Institute (Antoni van Leeuwenhoek Hospital)
Contact us to identify licensing opportunities for the Core Outcome Set data standards.
