PANCARE

Their core work

PANCARE (PanCare Foundation) is a pan-European NGO and clinical network dedicated to improving long-term care for survivors of childhood and adolescent cancer. They develop evidence-based clinical guidelines and patient-centred care pathways that address the late effects of cancer treatment — a chronic, lifelong challenge for hundreds of thousands of European survivors. Their more recent work focuses on the digital Survivorship Passport, a structured document that records a survivor's treatment history and recommended follow-up care, and on scaling this tool through electronic health records across national health systems. In research consortia, they serve as the authoritative patient and clinical network voice, contributing survivor expertise, established clinical relationships, and pan-European reach that purely academic partners cannot replicate.

What they specialise in

How they've shifted over time

PANCARE's early H2020 work centered on the clinical and behavioral side of survivorship: developing person-centred care guidelines, lifestyle interventions, and care quality frameworks for adult survivors of childhood cancer. Their more recent project marks a clear pivot toward digital infrastructure — the emphasis shifts to electronic health records, interoperability, and the practical implementation science needed to deploy the Survivorship Passport at scale across European health systems. The trajectory is from evidence generation and guideline writing toward system-level digital deployment and adoption science.

PANCARE is transitioning from clinical research partner to digital health implementer, making them increasingly relevant to EHR integration, health data interoperability, and national-level survivorship care system projects.

How they like to work

PANCARE has never led an H2020 project — they join exclusively as a participant, contributing specialist knowledge rather than project management. Despite receiving modest funding (average EUR 69,562 per project), they were embedded in consortia that collectively involved 27 unique partners across 13 countries from just two projects, which signals that larger research teams actively seek them out for their pan-European survivor network and clinical guideline credibility. They appear to function as a trusted specialist anchor whose involvement signals legitimacy to reviewers and opens doors to survivor communities across Europe.

From two projects, PANCARE connected with 27 unique partners across 13 countries — an unusually broad footprint for such a small organization, consistent with their role as a pan-European network spanning oncology centers, patient groups, and digital health partners. Their geographic reach is firmly European, reflecting a mandate to represent survivor interests continent-wide.

What sets them apart

PANCARE occupies a narrow but strategically valuable niche: they are the pan-European patient and clinical network specifically for childhood and adolescent cancer survivorship, which is an underserved long-term care population with complex, lifelong needs. No general health NGO can replicate their combination of survivor network access, established clinical relationships with paediatric oncology centers, and authorship credibility on survivorship guidelines. For any consortium building around cancer care quality, digital health records, or patient-centred care in oncology, PANCARE is one of very few organizations that can deliver both clinical expertise and genuine patient community reach across borders.

Highlights from their portfolio

• PanCareSurPass
  The largest of their two projects (EUR 76,625) and the most forward-looking — it addresses EU-scale digital deployment of the Survivorship Passport, combining EHR interoperability with implementation science in a way that bridges health informatics and clinical oncology.
• PanCareFollowUp
  Their first H2020 project established the clinical evidence base for person-centred survivorship care guidelines, directly shaping how long-term follow-up care for childhood cancer survivors is structured across Europe.