SciTransfer
Organization

European Alliance for Personalised Medicine

Pan-European alliance driving personalised medicine adoption through health data policy, genomic infrastructure, and cross-border network coordination.

NGO / AssociationhealthSINo active H2020 projects
H2020 projects
5
As coordinator
0
Total EC funding
€567K
Unique partners
152
What they do

Their core work

The European Alliance for Personalised Medicine (EAPM) is a multi-stakeholder alliance based in Slovenia that advocates for and supports the integration of personalised and precision medicine into European healthcare systems. They contribute policy expertise, network coordination, and knowledge exchange across large-scale health data initiatives — from hematological cancer research to genomic infrastructure and digital health strategies. Their role in projects typically involves bridging the gap between research communities, policymakers, and healthcare professionals to ensure that precision medicine advances translate into practical healthcare improvements.

Core expertise

What they specialise in

Personalised and precision medicine policyprimary
4 projects

Central theme across HARMONY, PIONEER, ExACT, and B1MG — spanning cancer, genomics, and health system integration.

Health data infrastructure and governanceprimary
3 projects

B1MG focuses on genomic data standards (FAIR, EOSC), DigitalHealthEurope on health data in the Digital Single Market, and HARMONY on big data platforms.

Hematological and oncological research networkssecondary
2 projects

HARMONY covers leukemia, lymphoma, and myelodysplastic syndromes; PIONEER addresses prostate cancer diagnostics and treatment.

Digital health and care innovationsecondary
2 projects

DigitalHealthEurope and ExACT both address digital transformation of healthcare delivery and person-centred integrated care.

Genomics and 1+ Million Genomes initiativeemerging
1 project

B1MG (Beyond 1 Million Genomes) positions them at the frontier of European genomic infrastructure and data quality standards.

Evolution & trajectory

How they've shifted over time

Early focus
Cancer-specific big data research
Recent focus
Health data infrastructure and policy

EAPM's early H2020 involvement (2017–2018) centred on disease-specific big data initiatives, particularly hematological cancers (HARMONY) and prostate cancer (PIONEER), with a focus on real-life patient data and evidence gaps. From 2019 onward, their work shifted decisively toward systemic and infrastructure-level topics: digital health governance, genomic data standards (B1MG), and the integration of precision medicine into healthcare systems at scale. This trajectory shows a move from contributing to disease-focused research consortia toward shaping the policy and data architecture that underpins all of personalised medicine.

EAPM is moving toward genomic data governance and digital health system design, making them a strong partner for future projects around European Health Data Space and cross-border genomic initiatives.

Collaboration profile

How they like to work

Role: active_partnerReach: European24 countries collaborated

EAPM consistently operates as a participant rather than a coordinator, joining large, multi-partner consortia (152 unique partners across 5 projects). Their strength lies in connecting diverse communities — researchers, clinicians, policymakers — rather than leading technical work packages. This makes them a reliable network-building partner who brings convening power and policy access to any consortium they join.

With 152 unique consortium partners across 24 countries, EAPM has one of the broader partnership networks relative to their project count. Their reach is pan-European with no strong geographic clustering, reflecting their role as a cross-border alliance rather than a national entity.

Why partner with them

What sets them apart

EAPM occupies a rare position as a non-governmental alliance that sits at the intersection of precision medicine research, health policy, and data governance — a combination few organisations can claim. While registered in Slovenia, their pan-European network of 152 partners across 24 countries gives them reach well beyond their national base. For consortium builders, EAPM brings political and policy connectivity that complements technical and clinical partners.

Notable projects

Highlights from their portfolio

  • B1MG
    Directly supports the EU 1+ Million Genomes Declaration — a flagship genomic infrastructure initiative with implications for all future personalised medicine projects.
  • HARMONY
    One of the largest big data platforms for hematological malignancies in Europe, representing EAPM's entry into disease-specific research at scale.
  • DigitalHealthEurope
    A coordination and support action directly tied to the EU Digital Single Market strategy, positioning EAPM at the policy-practice interface of digital health.
Cross-sector capabilities
Digital transformation and e-health governanceData standards and FAIR data infrastructureEducation and professional training in health sciencesEthics, legal, and societal implications (ELSI) of emerging technologies
Analysis note: With 5 projects and no coordinator roles, the profile is built primarily from participant contributions. EAPM's actual organisational capacity and team size are not visible from the data — their real influence may be larger than their funding share suggests, given their alliance/advocacy nature. No website was available in the dataset for verification.