ADD INFORMATION SERVICES

Their core work

ADD Information Services is a London-based organization focused on ADHD and neurodevelopmental conditions, likely providing patient advocacy, information dissemination, and lived-experience input to large-scale European research consortia. Their consistent role across all three projects — each addressing ADHD-related challenges from different angles (nutrition, comorbidities, treatment management) — indicates they serve as a bridge between the neurodevelopmental community and clinical researchers. Their small but consistent funding portions suggest they contribute specialist knowledge on patient needs, public engagement, and dissemination rather than conducting laboratory research themselves.

What they specialise in

How they've shifted over time

ADDISS began its H2020 participation with Eat2beNICE (2017), which focused on foundational biological mechanisms — nutrition, gut-brain axis, genetics, and epigenetics as drivers of impulsive and compulsive behaviour. From 2020 onward, their projects shifted decisively toward clinical and real-world management: neurodevelopmental comorbidities (CANDY) and chronic disease management with digital tools (TIMESPAN). This progression mirrors a broader field trend from understanding causes to improving patient outcomes through pharmacoepidemiology, national registers, and mHealth technologies.

ADDISS is moving toward digital health tools and real-world evidence for managing ADHD as a chronic, multi-system condition — a direction aligned with growing interest in mHealth and pharmaco-epidemiology.

How they like to work

ADDISS operates exclusively as a participant, never coordinating projects, which is typical of patient advocacy organizations that contribute community expertise rather than leading research agendas. With 43 unique partners across 18 countries from just 3 projects, they join large, diverse consortia — likely contributing patient perspectives, public engagement, and dissemination to multi-centre research efforts. Their modest funding shares (EUR 30,000–47,000) confirm a specialist contributor role rather than a work-package lead.

Despite only three projects, ADDISS has built a remarkably broad network of 43 unique partners across 18 countries, reflecting the large consortium sizes typical of neurodevelopmental research RIAs. Their reach spans most of the EU, positioning them as a well-connected node in the European ADHD research community.

What sets them apart

ADDISS occupies a rare niche as an ADHD-specialist information and advocacy organization within H2020 health research, providing the patient and community voice that large clinical consortia need but struggle to source internally. Their consistent presence across nutrition-behaviour, comorbidity, and digital health projects means they carry cross-project knowledge about how ADHD intersects with multiple medical domains. For consortium builders, they offer a tested partner for patient engagement, public communication, and ensuring research remains relevant to the people it aims to help.

Highlights from their portfolio

• Eat2beNICE
  Largest ADDISS funding (EUR 47,085) and an ambitious interdisciplinary project connecting nutrition, gut microbiome, genetics, and behavioural disorders across a large consortium.
• TIMESPAN
  Most forward-looking project, combining ADHD with cardiometabolic disease management using mHealth and machine learning — signalling ADDISS's move into digital health.
• CANDY
  Addresses the complex overlap of autism, ADHD, intellectual disability, and epilepsy, tackling neurodevelopmental comorbidity at a scale rarely attempted.